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The work we do is guided by people living with rare and devastating diseases. We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives.

SEE THEIR STORIES
  • Tanner, diagnosed with HPP at 4 days old, with a stuffed animal

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    RENE, MOM OF TANNER

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    TANNER
    LIVING WITH HPP

  • Roberta, diagnosed with gMG at 16 years old

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    ROBERTA

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    ROBERTA
    LIVING WITH GMG

  • The Trendys, diagnosed at 17, 14, 11, and 9 with LAL-D

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    LIVING WITH LAL-D

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    THE TRENDY FAMILY
    LIVING WITH LAL-D

  • Chelsey, living with NMOSD, painting

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    CHELSEY

    LIVING WITH NMOSD

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    CHELSEY
    LIVING WITH NMOSD

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    DONNAN

    LIVING WITH aHUS

    HEAR HIS STORY ABOUT aHUS

    DONNAN
    LIVING WITH aHUS

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5

APPROVED MEDICINES

7

RARE DISEASES & DEVASTATING CONDITIONS

25+

OFFICES WORLDWIDE

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TALENTED COLLEAGUES
SEE HOW WE DO IT

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Box of decorative masks

The Alexion Charitable Foundation awarded a total of $1.1 million in initial grants that align with its Rare Belonging® focus. Rare Belonging seeks to advance emotional well-being and educational opportunities and provide relief for critical needs for those living with or affected by a rare disease. Grant recipients include two leading nonprofits dedicated to serving the rare disease community: NORD and Global Genes.

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I feel like tomorrow I can do something, whereas before, I didn’t feel like tomorrow was possible.”
JESSE LIVING WITH gMG

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